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DONATE: #Bubby Is America's Charlie Gard, Help Him Get the Treatment Charlie Didn't

August 10, 2017
Staff

WRITER

A couple whose son has the same debilitating condition as Charlie Gard shared their story on radio Tuesday.

Russell Cruzan II and Michelle Budnik-Nap in Kalamazoo, Michigan, had no idea that their baby Russell would be born with mitochondrial DNA depletion syndrome. In a one-in-a-million coincidence, both parents carry the same gene, and their baby had a very small chance of inheriting the gene from both of them.

“[Russell and Charlie] both have mitochondrial DNA depletion syndrome; it’s just different gene mutations causing it,” Budnik-Nap explained.

It first appeared Bubby's treatment would be covered by insurance but the parents had some disheartening news shortly after their interview on Tuesday.

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"About an hour after our interview with you on Tuesday, we heard from our local hospital. They were the ones that were working on the prior authorization. They had received a denial from... Priority Health, stating that they will not cover the mito specialist in Boston, because she's a geneticist. And he sees a geneticist here. They don't understand that there's a difference between, you know, a mito specialist and a geneticist around here," Michelle said.

"Hold on. Guys, we are talking about $10,000 probably, maximum. This audience should be able to do that in the next ten minutes," Glenn said.

"Could you please go to YouCaring.com and just search for Bubby Cruzan. B-U-B-B-Y C-R-U-Z-A-N. It's #Bubby. Look for Bubby Cruzan. And if you can, $5 -- I mean, the people in this audience, just giving $5 at a time, we should be able to make a difference so this -- this couple can go get just an initial appointment to see if their baby can be helped so we can fight the other battle with -- what's the name of the health care company again?

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GLENN: I mean, if you thought the country had gone mad a minute ago, wait until we play the audio of some woman who was told on an airplane, "Wow, nice dress." Oh, my gosh. Wait until you hear the rant and what this woman is saying and who this woman is, in just a second.

First, we want to bring you up to speed on a story we covered a couple of days ago. If you remember the parents of Bubby Cruzan -- Russell Cruzan, the baby that was born and has the same disease that Charlie Gard had. We had the parents on.

They're from Wisconsin, I believe. Or Michigan. And they were really happy and bubbly. And we asked them, how are things going? They said great things about their insurance company, which may change. Their insurance company, which was priority health, I believe.

And they said everything was being covered. And now it's not. We got to get this story. Bubby Cruzan's mother Michelle is on the phone. Also, dad Russell is on the phone. How are you guys doing?

RUSSELL: Pretty good, how about you?

MICHELLE: Good.

GLENN: Good. Tell me what happened. Because we were hearing good things about this insurance company two days ago.

MICHELLE: Well, about an hour after our interview with you on Tuesday, we heard from our local hospital. They were the ones that were working on the prior authorization. They had received a denial from -- from Boston -- or, not Boston's -- I'm sorry. Priority Health, stating that they will not cover the mito specialist in Boston, because she's a geneticist. And he sees a geneticist here. They don't understand that there's a difference between, you know, a mito specialist and a geneticist around here.

GLENN: Right. And the geneticist that you have there in Michigan is -- is saying that, no, I'm the wrong kind of specialist.

MICHELLE: Yep. Yep. They're obviously doing everything they can. But they don't really have experience with his condition.

GLENN: So now what are you guys going to do? Are you guys appealing this? What is the name of the insurance company again?

RUSSELL: Priority Health.

MICHELLE: Priority Health. You know, we're working on an appeal right now. And we're also working with Boston Children's Hospital to see if they will allow us to make the appointment right now without insurance approval and, you know, possibly end up having to pay out of pocket. We just want to do everything we can to get little Russell to a doctor that can help him.

GLENN: Well, here again, we are seeing, you know, insurance providers -- in England, it was the state. In America, it is -- I'm sorry. What is the name of the company again?

RUSSELL: Priority Health.

GLENN: Priority Health.

Here we're seeing -- Stu, will you just remind me of that, in case I forget again?

STU: I don't remember the name. What was the name again? I'm sorry.

RUSSELL: Priority Health.

STU: Priority Health. Got it.

GLENN: Priority Health. Here we're seeing a company that decides that they know better than the actual doctors do. That's weird. Because the state over in England were listening to the doctors. Here in a capitalist, free market system, a company like --

PAT: And who was the company?

GLENN: Priority Health. Priority Health.

RUSSELL: Priority Health. Priority Health.

GLENN: They think they know more than the doctors, which is interesting. Boy, that probably should be -- I wonder if they have a website or if they have a Facebook.

Jeffy, could you look up Priority Health. So if they have a Facebook page.

JEFFY: Priority Health.

GLENN: Oh, my gosh, they don't like it -- companies don't like when you start to tweet their name and say things like, "How could you do what the health care system did to Charlie Gard? Are we going to run the clock out on this child too?"

Do they have a Facebook page? Look it up. It's Priority Health. I'm sure you could find it and maybe tweet Priority Health on that and ask them how this is -- how this is good for the family.

You have a YouCaring page. If you search for Bubby. B-U-B-B-Y. YouCaring.com. Can we -- if listeners wanted to help, you know -- you know, give you guys money to be able to pay for it yourself, will the hospital take self-funded people?

MICHELLE: We're working on that right now. We believe that if we had the funds to it, which right now we don't have any idea how much it would cost. But we've heard that -- another person said they had a 25-minute appointment there that cost over $2,000. They put the figure around 2800. But we're hoping if we have the funds, you know, after our travel and everything, that we would be allowed to pay out of pocket.

GLENN: So wait a minute. So you're just trying to get enough money to buy the airline ticket and the first doctor's appointment?

MICHELLE: We're -- we're working on it, yeah. Thankfully, Miracle Flights reached out to us after your show. Thank you so much. And, you know, they might help with that. But we still have lodging costs. Obviously, food for when we're there. Any expenses related to --

GLENN: Okay. Okay. Okay. Hold on.

MICHELLE: Pay for the appointment.

GLENN: Hold on. Guys, we are talking about $10,000 probably, maximum. This audience should be able to do that in the next ten minutes.

Could -- could you please go to YouCaring.com and just search for Bubby Cruzan. B-U-B-B-Y C-R-U-Z-A-N. It's #Bubby. Look for Bubby Cruzan. And if you can, $5 -- I mean, the people in this audience, just giving $5 at a time, we should be able to make a difference so this -- this couple can go get just an initial appointment to see if their baby can be helped so we can fight the other battle with -- what's the name of the health care company again?

RUSSELL: It's Priority Health.

GLENN: Priority Health.

PAT: And it looks like Priority Health is on Facebook. And they also have LinkedIn.

JEFFY: Twitter, @Priority Health. Facebook.

PAT: They're all over the internet.

GLENN: Really?

PAT: Yeah.

RUSSELL: They're one of the largest ones in the company.

GLENN: Huh, and what's their Facebook page?

RUSSELL: They should have like the most money. And they just don't want to cough it up.

STU: I think to get the Facebook page, you just go to Facebook.com and search for "Priority Health."

GLENN: Priority Health. That's how you do it? Facebook.com.

And I know companies, they like to hear on their Facebook page and they like to see on Twitter, they like to see people, you know, point all of the wonderful things that they have done. Now, sometimes, companies don't like it when you point out the heartless things that they might be forgetting to do. But I'm sure they have just forgotten that they -- the business that they all, you know, dreamt about getting into when they were kids and they were on the playground. Some day, I'm going to be an actuary. Some day, I'm going to be an insurance agent for Priority Health. I'm sure they've just forgotten those dreams from the playground and forgotten that they're there to help heal people.

PAT: You would assume by the name, Priority Health, that health is a priority. Wouldn't you?

GLENN: You would. You would.

PAT: You would think that, but...

JEFFY: Hmm. They've got a feedback button on their website too.

GLENN: Do they really? Priority Health has that?

JEFFY: Sends them a secure email.

PAT: That's interesting.

GLENN: Let's say you had $5 and you could go to YouCaring.com and you could help this couple raise money so we don't, as a capitalist, free society, do exactly to these parents what England's health care system did just a few weeks ago. Let's -- let's show the world that that's not the way capitalism works. That that's not the way free people behave. Let's get them into an appointment. And let's say -- if you have time after that, you might go to Facebook and to Twitter and just tweet something to Priority Health in a very nice, reasoned way. Because I'm sure they just need to be remind that health is their priority.

Guys, thank you so much. Michelle, Russell.

RUSSELL: Thank you.

MICHELLE: Thank you, Glenn.

GLENN: We'll check in with you again. God bless.

STU: If you go to @worldofStu, by the way, on Twitter, I tweeted the -- and I'm sure @GlennBeck will have it tweeted as well, the link to the YouCaring page. So make sure you can actually find it. And if you wanted to find any of the social sites, if you search Google for "Priority Health," you will see --

GLENN: Is that the insurance company?

STU: That's the insurance company they were just talking about.

GLENN: Priority Health.

STU: Priority Health is the name of it.

GLENN: The one that they paid to give them -- give their health priority. And then the doctor said, "No, I'm a different kind of DNA specialist. I'm really not a geneticist that can do this kind of work." And so the hospital and the doctor said they should go to this particular specialist. And Priority Health said, "No. That person is good enough for you."

PAT: Hmm.

GLENN: Huh. I wonder how much Priority Health's -- boy, we should look into Priority Health because I bet they're not gouging people's eyes out as well. I bet they would love us to spend a day, several days, a freaking month going over what they do. Maybe I could take -- you know what, if Priority Health doesn't see the error of their ways, I'm going to dedicate Monday as an open phone day. And I will take the phone calls of all of the Priority Health customers that maybe feel their eyes are being gouged out. And we'll take those calls, and we'll let America know how much their health is a priority for Priority Health.

STU: Of course, we should give them the opportunity to do that.

GLENN: I know. I know. So I think they're going to find the error of their ways. I think they're going to be able to say, you know what, that's crazy. Because we misunderstood. It's not the same kind of doctor. And we don't know more than what the experts in the field know. And so we're going to -- we're going to make this a priority.

But in case --

STU: What, health?

GLENN: In case they would like some extra free publicity, I'm going to help them have all of the free publicity that I can possibly provide. And, you know, you always say, don't talk to the -- don't -- I don't want to talk to the salesman. I want to talk to the customers.

So if they're such a great insurance company, which I'm sure they are, they won't have any problem having customers call up and give them a free commercial all freaking Monday.

But I'm sure they're going to wake up.

The West is dying—Will we let enemies write our ending?

Harvey Meston / Staff | Getty Images

The blood of martyrs, prophets, poets, and soldiers built our civilization. Their sacrifice demands courage in the present to preserve it.

Lamentations asks, “Is it nothing to you, all ye that pass by?”

That question has been weighing on me heavily. Not just as a broadcaster, but as a citizen, a father, a husband, a believer. It is a question that every person who cares about this nation, this culture, and this civilization must confront: Is all of this worth saving?

We have squandered this inheritance. We forgot who we were — and our enemies are eager to write our ending.

Western civilization — a project born in Judea, refined in Athens, tested in Rome, reawakened in Wittenberg, and baptized again on the shores of Plymouth Rock — is a gift. We didn’t earn it. We didn’t purchase it. We were handed it. And now, we must ask ourselves: Do we even want it?

Across Europe, streets are restless. Not merely with protests, but with ancient, festering hatred — the kind that once marched under swastikas and fueled ovens. Today, it marches under banners of peace while chanting calls for genocide. Violence and division crack societies open. Here in America, it’s left against right, flesh against spirit, neighbor against neighbor.

Truth struggles to find a home. Even the church is slumbering — or worse, collaborating.

Our society tells us that everything must be reset: tradition, marriage, gender, faith, even love. The only sin left is believing in absolute truth. Screens replace Scripture. Entertainment replaces education. Pleasure replaces purpose. Our children are confused, medicated, addicted, fatherless, suicidal. Universities mock virtue. Congress is indifferent. Media programs rather than informs. Schools recondition rather than educate.

Is this worth saving? If not, we should stop fighting and throw up our hands. But if it is, then we must act — and we must act now.

The West: An idea worth saving

What is the West? It’s not a location, race, flag, or a particular constitution. The West is an idea — an idea that man is made in the image of God, that liberty comes from responsibility, not government; that truth exists; that evil exists; and that courage is required every day. The West teaches that education, reason, and revelation walk hand in hand. Beauty matters. Kindness matters. Empathy matters. Sacrifice is holy. Justice is blind. Mercy is near.

We have squandered this inheritance. We forgot who we were — and our enemies are eager to write our ending.

If not now, when? If not us, who? If this is worth saving, we must know why. Western civilization is worth dying for, worth living for, worth defending. It was built on the blood of martyrs, prophets, poets, pilgrims, moms, dads, and soldiers. They did not die for markets, pronouns, surveillance, or currency. They died for something higher, something bigger.

MATTHIEU RONDEL/AFP via Getty Images | Getty Images

Yet hope remains. Resurrection is real — not only in the tomb outside Jerusalem, but in the bones of any individual or group that returns to truth, honor, and God. It is never too late to return to family, community, accountability, and responsibility.

Pick up your torch

We were chosen for this time. We were made for a moment like this. The events unfolding in Europe and South Korea, the unrest and moral collapse, will all come down to us. Somewhere inside, we know we were called to carry this fire.

We are not called to win. We are called to stand. To hold the torch. To ask ourselves, every day: Is it worth standing? Is it worth saving?

The light shines in the darkness, and the darkness has not overcome it. Pick up your torch. If you choose to carry it, buckle up. The work is only beginning.

This article originally appeared on TheBlaze.com.

Stop coasting: How self-education can save America’s future

Joe Raedle / Staff | Getty Images

Coasting through life is no longer an option. Charlie Kirk’s pursuit of knowledge challenges all of us to learn, act, and grow every day.

Last year, my wife and I made a commitment: to stop coasting, to learn something new every day, and to grow — not just spiritually, but intellectually. Charlie Kirk’s tragic death crystallized that resolve. It forced a hard look in the mirror, revealing how much I had coasted in both my spiritual and educational life. Coasting implies going downhill. You can’t coast uphill.

Last night, my wife and I re-engaged. We enrolled in Hillsdale College’s free online courses, inspired by the fact that Charlie had done the same. He had quietly completed around 30 courses before I even knew, mastering the classics, civics, and the foundations of liberty. Watching his relentless pursuit of knowledge reminded me that growth never stops, no matter your age.

The path forward must be reclaiming education, agency, and the power to shape our minds and futures.

This lesson is particularly urgent for two groups: young adults stepping into the world and those who may have settled into complacency. Learning is life. Stop learning, and you start dying. To young adults, especially, the college promise has become a trap. Twelve years of K-12 education now leave graduates unprepared for life. Only 35% of seniors are proficient in reading, and just 22% in math. They are asked to bet $100,000 or more for four years of college that will often leave them underemployed and deeply indebted.

Degrees in many “new” fields now carry negative returns. Parents who have already sacrificed for public education find themselves on the hook again, paying for a system that often fails to deliver.

This is one of the reasons why Charlie often described college as a “scam.” Debt accumulates, wages are not what students were promised, doors remain closed, and many are tempted to throw more time and money after a system that won’t yield results. Graduate school, in many cases, compounds the problem. The education system has become a factory of despair, teaching cynicism rather than knowledge and virtue.

Reclaiming educational agency

Yet the solution is not radical revolt against education — it is empowerment to reclaim agency over one’s education. Independent learning, self-guided study, and disciplined curiosity are the modern “Napster moment.” Just as Napster broke the old record industry by digitizing music, the internet has placed knowledge directly in the hands of the individual. Artists like Taylor Swift now thrive outside traditional gatekeepers. Likewise, students and lifelong learners can reclaim intellectual freedom outside of the ivory towers.

Each individual possesses the ability to think, create, and act. This is the power God grants to every human being. Knowledge, faith, and personal responsibility are inseparable. Learning is not a commodity to buy with tuition; it is a birthright to claim with effort.

David Butow / Contributor | Getty Images

Charlie Kirk’s life reminds us that self-education is an act of defiance and empowerment. In his pursuit of knowledge, in his engagement with civics and philosophy, he exemplified the principle that liberty depends on informed, capable citizens. We honor him best by taking up that mantle — by learning relentlessly, thinking critically, and refusing to surrender our minds to a system that profits from ignorance.

The path forward must be reclaiming education, agency, and the power to shape our minds and futures. Every day, seek to grow, create, and act. Charlie showed the way. It is now our responsibility to follow.

This article originally appeared on TheBlaze.com.

Glenn Beck joins TPUSA tour to honor Charlie Kirk

Joe Raedle / Staff | Getty Images

If they thought the murder of Charlie Kirk would scare us into silence, they were wrong!

If anything, Turning Point will hit the road louder than ever. On Monday, September 22, less than two weeks after the assassination, Charlie's friends united under the Turning Point USA banner to carry his torch and honor his legacy by doing what he did best: bringing honest and truthful debate to Universities across the nation.

Naturally, Glenn has rallied to the cause and has accepted an invitation to join the TPUSA tour at the University of North Dakota on October 9th.

Want to join Glenn at the University of North Dakota to honor Charlie Kirk and keep his mission alive? Click HERE to sign up or find more information.

Glenn's daughter honors Charlie Kirk with emotional tribute song

MELISSA MAJCHRZAK / Contributor | Getty Images

On September 17th, Glenn commemorated his late friend Charlie Kirk by hosting The Charlie Kirk Show Podcast, where he celebrated and remembered the life of a remarkable young man.

During the broadcast, Glenn shared an emotional new song performed by his daughter, Cheyenne, who was standing only feet away from Charlie when he was assassinated. The song, titled "We Are One," has been dedicated to Charlie Kirk as a tribute and was written and co-performed by David Osmond, son of Alan Osmond, founding member of The Osmonds.

Glenn first asked David Osmond to write "We Are One" in 2018, as he predicted that dark days were on the horizon, but he never imagined that it would be sung by his daughter in honor of Charlie Kirk. The Lord works in mysterious ways; could there have been a more fitting song to honor such a brave man?

"We Are One" is available for download or listening on Spotify HERE